About our mission
These beautiful babies were born with a one small error in their genes. The initial error triggered the unstoppable degeneration of white matter in their brains called Canavan's disease.
The child with Canavan cannot freely sit, stand or walk. As the condition progresses child will loose eye sight, have seizures, become paralyzed and eventually die.
We do not want such destiny to our kids. Let's why we're dedicated to find a cure for Canavan disease in the nearest future.
Who We Are
We are a small group of parents with children afflicted by Canavan's disease, advocates of cutting edge gene therapy research and passionate volunteers who want to make the change in the health system so other rare disease patients do not have to suffer.