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#fixhisgenes campain
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About our mission
These beautiful babies were born with a one small error in their genes. The initial error triggered the unstoppable degeneration of white matter in their brains called Canavan's disease.

The child with Canavan cannot freely sit, stand or walk. As the condition progresses child will loose eye sight, have seizures, become paralyzed and eventually die.

We do not want such destiny to our kids. Let's why we're dedicated to find a cure for Canavan disease in the nearest future.

Who We Are

We are a small group of parents with children afflicted by Canavan's disease, advocates of cutting edge gene therapy research and passionate volunteers who want to make the change in the health system so other rare disease patients do not have to suffer.

Similar vectors of gene therapy are being developed to treat more common conditions such as to ALS, Alzheimer's, Parkinson's, and other progressive degenerative neurological disorders.


The Pronin & The Landsman family ran numerous campaigns in order to secure the spots for their kids in the clinical trial help and to bring awareness about this type of new treatment to the public.

Why it matters


If participate in our efforts, you will help us to move the needle and bring new advances of bio medical science to the patients in need worldwide!
Video link



Ways to help



You can donate at our fundraising sites



Here campaign links for Artyom (he still needs to raise XXXX to be included in the trial)



Facebook

Gofundme



Here you can donate for Benny & Josh

Gofundme



Alternatively, you can make a gift to the Rowan Foundation with a note (for Canavan's research and name either child as a benificiary)





Social media outreach

We created hash tag #fixhisgenes





To show your support

For these kids you can make a selfie wearing jeans (appropriate amount of creativity is welcome ) and accompany your post with a hashtag #fixhisgenes with a link to one of the fundraising sites.

Please share, share, share

You can write a story about this cause and share the poster with Artyom, Benny or Josh on your social media

About Summerset
This is a summer camp for kids and teens 10-17 years old. It is located on the Adriatic sea in the small coastal village of PakoŇ°tane among pine trees forest and in 10 minutes from the city boat station. Each camper will be welcomed with open arms and exciting activities!
Why treatment is so expensive?
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Artyom Pronin
18 months, Podolsk, Russia
Hello! My name is Artyom. I like ...
Please help me to get a new gene therapy treatment.
Benny Landsman
Hi everybody! My name is Josh. I like ...
Please help me to get a new gene therapy treatment.
Josh Landsman
18 months, Brooklyn, USA
Hi everybody! My name is Josh. I like ...
Please help me to get a new gene therapy treatment.
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