Baby Artyom Pronin (21 mo) from Podolsk (Russia) was born with a rare genetic condition called Canavan disease and urgently needs treatment in the USA.
Artyom's brain lacks essential enzyme that causes deterioration of the white matter (myelin) in his brain, preventing the proper transmission of nerve signals. The consequences of this disease, if not treated, are irreversible and children usually die in infancy.
The leading researcher of Canavan's disease, Paola Leone, at Rowan University, NJ (USA) and famous American neurologist Christopher Janson (University of Chicago, Illinois) got interested in his case and invited him to participate in the clinical trial of cutting-edge technology treatment.
The treatment & rehabilitation cost around $100, 000. These funds Artyom's family raised in Russia last February by running numerous fundraising campaigns.
The added manufacturing cost of the treatment from the lab is a big blow — $800.000 per patient. Family has already exploited all their networks, friends and family.
That is why at this point Artyom urgently needs your help.